Colon Cancer Alliance for Research & Education for Lynch Syndrome

What is Lynch Syndrome?

Lynch Syndrome is a genetic disease that dramatically increases the risk of cancer, especially colon and uterine cancers. Knowing about Lynch Syndrome is important for patients and their family members to prevent future cancers.

Our efforts are focused on educating individuals and healthcare providers about Lynch Syndrome. Through education we can increase the awareness of Lynch Syndrome, identify affected individuals, and then diagnose cancers at their earliest possible stage. This program can significantly improve the life and longevity of affected individuals.

About the Organization


CCARE LS Logo

Symbolism in the mark

The logo was crafted to symbolize the many facets of Lynch Syndrome. The double helix signifies the DNA component. The colors correspond to the relevant cancer awareness ribbons.

Peach: Uterine cancer

Periwinkle: Stomach cancer

Teal: Ovarian cancer

Blue: Colon cancer

Our Partners

The Colon Cancer Alliance for Research & Education for Lynch Syndrome partners with many other organizations which are battling Lynch and its related diseases. Please visit the Our Partners page to learn more about these partnerships.

Research

We award the Perlman Family CCARE Lynch Syndrome Research Stipend yearly to researchers who are researching Lynch Syndrome and its related diseases. For information about how to apply for this stipend, please visit the Stipend Info page.

Recipients in past years include:

  • 2014: Erin Greenberg, MD, Department of Obstetrics & Gynecology, Women & Infants Hospital of Rhode Island
  • 2013: Miya Marlayna Frick, California State University Stanislaus Genetic Counseling Master’s Program in partnership with Kaiser Permanente and University of California San Francisco

Founders

This organization was founded by Sharon Perlman, DDS, MPH and Neil Bradford Perlman, MD
Contact Us

sharon_perlman

Sharon Perlman DDS, MPH

neil_perlman

Neil Perlman MD


heart

In loving memory


Drs. Neil and Sharon Perlman created Colon Cancer Alliance for Research and Education (CCARE) in memory of their family members affected with Lynch Syndrome.

Doris Elissa Jordan

Doris Taflove Perlman

Mother
Math Teacher
Died at age 55

Elissa Faye Perlman, PsyD

Sister
Art Therapist
Died at age 42

Jordan Adam Haase

Sharon’s Son
Died at 5 months

Meet the other members of the team

 

Board of Directors

Sharon J Perlman, DDS, MPH
President & Co-Founder

sharon_perlmanDr. Perlman is a licensed dentist with a passion for public health. Prior to establishing CCARE Lynch Syndrome, she served as Chief of Dental Services for the Cook County Department of Public Health and Adjunct Associate Professor, Department of Pediatric Dentistry for the University of Illinois College of Dentistry. Named by Today’s Chicago Woman as “100 Women Making a Difference,” Dr. Perlman has dedicated her career to increasing access to care for underserved populations, with a special emphasis on children and is a consultant to the Ounce of Prevention. More recently involved in genetics, she cofounded CCARE Lynch Syndrome with her brother. As an endometrial cancer survivor, she has a particular interest in increasing gynecologic cancer Lynch Syndrome awareness. She is an active member of the Foundation of Women’s Cancer Allied Support Group, and recently established the Perlman Family CCARE Lynch Syndrome Research Award, administered by the Society of Gynecologic Oncology.  She and her husband reside in Chicago with their two teenage children and their Anti-Cruelty Society adopted cat.

Neil Bradford Perlman, MD
Medical Director & Co-Founder

neil_perlman Neil B. Perlman, MD, is a practicing physician who is board certified in internal medicine. Dr. Perlman has been a primary investigator in numerous industry and government-sponsored pharmaceutical research studies. He received his medical degree from the University of Illinois and completed an internship and residency in Internal Medicine at Northwestern University. He received his undergraduate degree in bioengineering from the University of Illinois. He holds 2 patents for a “Habit Cessation Aide” to assist people in quitting smoking. Earlier, Dr. Perlman was active in health promotion when he joined the University of North Carolina Chapel Hill as Assistant Professor of Medicine and was appointed Medical Director of the North Carolina State Highway Patrol.

David K. Hasse, Esq.
Treasurer, Secretary,

daveMr. Hasse is an attorney who has focused his practice on labor and employment matters. He is a Shareholder at Littler Mendelson, the nation’s largest labor and employment law practice, and has particular expertise in non-competition agreements and trade secrets, wage and hour class actions and ERISA litigation. He also has significant experience serving on Board of Directors of other non-profit corporations and holding officer positions in those organizations. Mr. Hasse is a summa cum laude graduate of Carleton College, with a Bachelor of Arts degree in political science, and a cum laude graduate of the Harvard Law School.

Sara Kimber, MD

sarahSara Kimber, M.D. is a family physician who graduated from The University of Illinois and Rush Medical College. Currently she is the medical director for chronic care at the Tri-City Health Partnership, a free clinic in St. Charles, Illinois that is staffed by volunteer physicians. Sarah and her husband, Doug, live in Batavia, Illinois where she enjoys hiking, gardening, and photography. She has become concerned about Lynch Syndrome after seeing its devastating effects on a close friend’s family, and looks forward to assisting CCARE.

 

Adriana I. Reyes-Villanueva, Esq.

adrianaAdriana I. Reyes-Villanueva is an in-house Counsel for PepsiCo, Inc. based in Chicago. In her current capacity, Ms. Reyes-Villanueva is responsible for advising and representing internal clients in compliance matters involving federal and state labeling, advertising and marketing laws.

Ms. Reyes-Villanueva previously worked as a labor and employment attorney at PepsiCo and at The Quaker Oats Company prior to its acquisition by PepsiCo. Ms. Reyes-Villanueva also previously worked as a labor and employment attorney at Vedder, Price, Kaufman & Kammholtz and at Jenner & Block in Chicago.

Ms. Reyes-Villanueva received her Bachelor of Science degree from Cornell University’s School of Industrial and Labor Relations and her Juris Doctor degree from Harvard Law School.

Lisa Wolfe, MD

lisaLisa Wolfe, M.D., is board certified in Pulmonary, Critical Care and Sleep medicine. She is currently an Associate Professor of Medicine in the Division of Pulmonary and Critical Care Medicine at Northwestern University, and director of the pulmonary rehabilitation program at the Rehabilitation Institute of Chicago. Dr. Wolfe has an interest in noninvasive ventilation, and has been working as part of the ALS care team since 2003. Dr. Wolfe received her medical degree from Ohio State University and Residency and Fellowship training at Northwestern University.

Advisory Board

Henry Lynch, M.D.

Scott Weissman, M.S.

Joanne Oppenheim, DDS.

Volunteers

Bob Baker M.D.

Charlie Bury

Pierre Improv Comedy

Adam Burke

Lila Goldberg

The Dave and Ben Ensemble

Cameron Esposito

Prescott Tolk

Adam Raichel

pH Productions Comedy for the People PHunny, pHresh & pHantastic

David Olson – Master Debaters