Insurance Issues

What about insurance?

There are several types of insurance that a person with Lynch Syndrome must be concerned about.

Health Insurance

The Genetic Information Nondiscrimination Act of 2007 (GINA) prohibits insurers from using genetic diseases in determining the insurability for patients with Lynch Syndrome. However, if a person develops a Lynch Syndrome related cancer, the GINA Act no longer applies since the condition is no longer pre-existing. It is possible that their insurance rates can go up or that they may not qualify for insurance based on the cancer diagnosis itself; it is unlikely the diagnosis of Lynch Syndrome would affect insurance coverage. However, as of September 23, 2010, the new Health Care Reform act prevents insurers from excluding children with preexisting conditions from being covered by their family policy. Insurers had until January 1, 2014 to rescind preexisting-condition exclusions on adults and a cap on lifetime medical expenses. These federal mandates are a great benefit to individuals with Lynch syndrome, due to the increased risk of multiple types of cancers and subsequent costs of screening and treatment. For these reasons, it is very important to have a good health care policy, and to maintain this policy.

Disability Insurance

The GINA act does not prevent insurance companies from using Lynch Syndrome in their underwriting for disability insurance. This may prevent a person from obtaining reasonably priced disability insurance once the diagnosis is made. For this reason, you may want to buy a disability policy before any genetic testing for Lynch Syndrome is undertaken. You could also buy an insurance rider that would allow you to increase the amount of insurance in the future based on current income without having to go through underwriting again. Lastly, you may also want to purchase a COLA rider. This will automatically increase the amount of disability based on the Cost of Living.

Life Insurance

The GINA act does not prevent insurance companies from using Lynch Syndrome in their underwriting for life insurance. This may prevent a person from obtaining reasonably priced life insurance once the diagnosis is made. For this reason, you may want to buy a life insurance policy before any genetic testing for Lynch Syndrome is undertaken.

Long Term Care

The GINA act does not prevent insurance companies from using Lynch Syndrome in their underwriting for long term care insurance. This may prevent a person from obtaining reasonably priced long term care insurance once the diagnosis is made. For this reason, you may want to buy a long term care insurance policy before any genetic testing for Lynch Syndrome is undertaken.