Fight Lynch Syndrome

Colon Cancer Alliance for Research and Education for Lynch Syndrome

What is Lynch Syndrome?

Lynch Syndrome is a hereditary disorder that affects up to 1.2 million people in the United States. It increases the risk of colon, uterine, ovarian, and other cancers. These cancers often occur at a young age.

Our Mission

Educate the public and healthcare professionals about Lynch Syndrome and to help fund research for a cure for this disease.

Are you at risk?

If multiple family members have cancer and at least one person is younger than the age of 50, please learn more about Lynch Syndrome.

Resources for Families

Information for Medical Staff

CCARE Events and News

March 22, 2025 - Lynch Syndrome Awareness Day.
We are celebrating at the 10th annual LYNKED IN Conference at the Dana-Farber Cancer Institute in Boston.

We are delighted to announce our partnership with the Collaborative Group of the Americas Inherited Gastrointestinal Cancer (CGA-IGC) CCARE Lynch Syndrome is proud to announce the winner of the first CCARE Lynch Syndrome & CGA-IGC Research Award. This is a two-year $36,000 award that invites applications on research, quality improvement, or patient engagement projects that improve the lives of patients and/or their family members with Lynch syndrome. The winners are Dr Holli Loomans-Kropp from Ohio State and Dr. Zachariah Foda from Johns Hopkins. This project will help unify Lynch syndrome research at multiple universities throughout the United States.

Dr. Zachariah Foda, Dr. Sharon Perlman, Dr. Holli Loomans-Dropp, Dr. Neil Perlman

Lynch Syndrome Research Studies

Physicians at the Dana-Farber Cancer Institute at Harvard University are creating a registry of Lynch syndrome Patients. Click here for more information.

Lynch Syndrome Family Communication Study

If you are over 18 years old and were recently diagnosed with Lynch syndrome, please consider helping out on improving Family Communication with a research project from the University of Utah Graduate Program in Genetic Counseling and the Huntsman Cancer Institute. It is online, will take 20-30 minutes, and eligible participants may receive a $15 Amazon gift card. If interested, Email Dr. Lingzi Zhong at Lingzi.zhong@hci.utah.edu.

IGNITE-TX (Identifying individuals for Genetic Testing Treatment for hereditary cancer) is conducting a study to help families share hereditary cancer information with relatives and make decisions about genetic testing. If you or someone in your family has a BRCA1 or BRCA2 mutation or a Lynch syndrome mutation, you may be eligible to participate. Click here for more information.

Lynch Syndrome Risk Calculator

Researchers at Harvard University developed an on-line Lynch syndrome risk calculator called PREMM. To do a quick calculation based on your family history click the following link.