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Q: What’s the difference between Lynch syndrome and HNPCC? A: Lynch syndrome used to be known as HNPCC, which stands for hereditary non-polyposis colorectal cancer. Dr. Henry Lynch studied families with multiple cancers. At the time, the most commonly known hereditary colon cancer was Familial Adenomatous Polyposis (FAP). In FAP people have 100s of colon…

Q: I have had a problem getting my colonoscopy covered. A: According to the Affordable Care Act (ACA) insurance companies are supposed to cover a screening colonoscopy without any out-of-pocket costs. While a screening colonoscopy is supposed to start at the age of 45, people with Lynch syndrome can and should start in their 20s. Occasionally…

Q: My sister was just diagnosed with Lynch Syndrome. Should I get tested and how? A: Since Lynch syndrome is inherited from one of your parents, you have a 50/50 chance of also having Lynch syndrome. You can test through your physician’s office or by a home testing company. It helps to have a genetic…